It took me a lot of hours and searching to find these websites, which should be FRONT AND CENTER in the health community. In my searching and READING, I have found that my acute attack of Colitis, which put me in hospital for eight days last month and has left me with lingering consequences may just have been caused by my MCS!! "Intestinal distress" seems to be one of the ugly symptoms of MCS.
The INVISIBLE DISABILITIES WEBSITE; http://invisibledisabilities.org/ is an EXCEPTIONAL website with excellent information and links on every page to more information. At the bottom of their home page, the link LIVING WITH ID, http://invisibledisabilities.org/living-with-invisible-disabilities/ takes you to a page with articles and links that are SO informative, but I clicked on the FRIENDSHIPS OVER FRAGRANCES article, http://invisibledisabilities.org/coping-with-invisible-disabilities/relationships/friendships-over-fragrances/. It hit SO CLOSE to home that I started to cry. The fact that this couple, on a trip they had to make to hospital, were treated SO well and accommodated SO WELL by hotels, Disney, restaurants....
...and I couldn't even count on ONE motel in Gainesville to supply a fragrance free room for two nights so we could attend my daughters' wedding! Instead, they actually SPRAYED the room that morning after PROMISING ME they would have an unscented room! Needless to say, my tripadvisor.com review of the Budget Inn on SW 13th in Gainesville was NOT very nice: http://www.tripadvisor.com/ShowUserReviews-g34242-d3361485-r180050217-Budget_Inn_Gainesville-Gainesville_Florida.html#CHECK_RATES_CONT
Reading the FRIENDSHIPS OVER FRAGRANCES made me cry because I can't get anyone on board, let alone businesses in North Florida!! Doctors offices are TOXIC and they don't even KNOW what MCS IS!
The link in the article for the Cleaner Indoor Air Campaign, http://cleanerindoorair.org/ brought me to that website and many more articles and available information on the ever increasing ENVIRONMENTAL ILLNESSES which are plaguing an ever increasing population.
Below are links to their website articles in part; this website is dedicated to environmental illness issues. They are associated and supported by the Invisible Disabilities website,
http://cleanerindoorair.org/about/
http://cleanerindoorair.org/environmental-illness-resources/
http://cleanerindoorair.org/campaigns/choose-friendships-over-fragrances/
From the cleanerindoorair.org site, they link to articles, one of which below,
http://www.environmentalhealthconsultant.com/about.htm
I recommend you link to these and every other piece of information on the InvisibleDisabilities.org website. They have brochures, posters and articles available to print so each and every one can help SPREAD THE WORD.
Also, if you are looking for somewhere to donate your extra money, THIS is the PLACE. PLEASE SUPPORT THEM.
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